"The child must face reality. It is not the parent who has the disease, but his son", say some of the boys and girls who are part of the Scientific Council of the Hospital Sant Joan de Déu, which hosts the KIDS Congress of Europe next week.
Paediatric clinical trials have certain peculiarities that make them different to those addressed to adults. Education of young patients is essential to anticipate and prepare their participation, but also to help them in the decision making process .
In the followig video, the different phases of a clinical trial are easily explained. This educational resource has been developed thanks to the boys and girls of KIDS Barcelona.
Knowing the experience of a patient that has participated in a clinical trial may help to make decisions. Besides, it contributes to anticipate information about the clinical trial process and clear some doubts that may arise from the participant perspective. The following video gathers different testimonies explaining several moments of their experience, so that the informative process prior to an innovative treatment is more attractive and warmer.